Some about me

 Hi. Just a bit about me. I don’t just put my self out there because of all the crap I’ve been through. But I do hope this will help people to understand people like me.

I have muscular dystrophy. For those who don't know what it is Muscular dystrophy is a group of diseases that cause progressive weakness and loss of muscle mass. In muscular dystrophy, abnormal genes (mutations) interfere with the production of proteins needed to form healthy muscle.

Muscular dystrophies (MD) are a genetically and clinically heterogeneous group of rare muscle disorders that cause progressive weakness and breakdown of skeletal muscles over time.

So basically I have a rare condition that makes my muscles weak and at some point will kill me but until then I will live my life as best as I can.

About this Blog

 Welcome. This blog is to hopefully help people understand what my life is like. 

I know some will say I’m looking for attention or playing victim and I  am NOT asking for sympathy by making this blog, that is totally not true. 

Only those with closed minds who have never been a disabled person would say that. 

This is my way of helping people understand.

Ok. A bit about this blog and sorry if I babble. yes I’m disabled with muscular dystrophy. for those who don’t know what that is I’ll make it simple, its the labor day telethon thing and is in no way like MS. I will get into that more later.

This is a big step for me because I have always been shy with strangers due to most seeing people like me as a freak and asking stupid questions like do I sleep in my wheelchair or talking to me like I’m six.

I hope this blog will help people see that just because someone’s legs don’t work doesn’t mean their brain doesn’t work too. 

If you're wondering about the donation button, it's because getting out to events is now pretty much impossible for me now. The only way I can enjoy concerts,meet and greets and other things is through live streaming so any donation helps me do those things.

DONATE HERE